Events
Living with NF
“Living with NF” is a yearly event in support of individuals with Neurofibromatosis. This was started in May 2022, organized by National Cancer Centre Singapore (NCCS), and later co-organized along with KK Women’s and Children’s Hospital (KKH) from 2024. The event usually includes a series of talks on topics relevant to individuals with NF, covering aspects such as clinical, risk management, and psychosocial aspects of the condition. Participants also engage in fun activities to encourage bonding and social interaction amongst them, to build community.
The event also includes a “Shine the Light” walk, a movement that is part of the “Shine a Light” global campaign organized by the Children’s Tumour Foundation. This movement aims to bring awareness about NF in the community by lighting up buildings, bridges and monuments in the NF colours of blue and green.
2026 (May 16)
Venue:
Trehaus Event Space @ Funan Mall
Walk:
The walk started from Funan Mall to Cavenagh Bridge, with three pit stops for photo taking
2025 (May 17)
Venue:
The Star Performing Arts Centre
Walk:
A group walk was held at one-north Park (Rochester East).
2024 (May 17)
Venue:
National Gallery Singapore
Walk:
The walk started from the Padang Entrance of the National Gallery, leading toward the Marina Bay area.
2023 (May 20)
Venue:
National Gallery Singapore
Walk:
The "Shine a Light on NF Walk" commenced at the Padang Entrance of the National Gallery.
2022 (May 14-17)
Venue:
The event was spearheaded by NCCS, with a public forum held on May 14.
Walk:
Families and staff gathered at the Marina Bay Waterfront Promenade to view the first synchronized light-up of Singapore landmarks.
NFSS EXCO Meeting
The first EXCO meeting took place over zoom on 4th Aug 2025, with fruitful discussions on how to set up the society.
Our first in-person meeting took place on 11th Oct 2025, filled with food, fellowship and plans made to establish the society.
